Saturday, October 31

Halloween.
Gary, Steph and Matthew were going to dress up like vanpires.
Gary had made a mini coffin so Matthew could scare the kids.
Warped sense of humor - but what can we say - he's a Bouvier...
Tough day today.
Another round of dialysis.
Had to take feeding tube out - his stomach and bowels are not digesting the food.
Not sure why.
They are trying to figure this out.
What's left?
The liver?
Every part of his body is affected.
He is restless.
Tries to move.
Can't
Tries to open his eyes
Can't
What do to do.
Knees to Floor - praying....
"God don't let him be in pain"
Did Brain Scan - showed there was not trauma.
He shouldn't have anymore seizures.
They are going to try and ween him off the seizure medicine.
Level went from 7 to 6 on the dialysis.
Needs to be at least a 4.
They are going to trach him on Monday at 1PM.
Usually they do this in 7 to 8 days but of course Gary is "different".
Again, always the Bouvier...
Dad are you listening up there??
Why are you guys so stubborn.
Once they do trach we should see some difference.
Wont' be so uncomfortable.
More to come.