I've come to the conclusion that sleep is over-rated....
Gary had a restless night.
Tried to pull the breathing tube out again.
He is such a fighter....
The brain scan came back good.
He is responding (when he comes out of sedation).
He will squeeze your hand and gives you that "Bouvier" look.
He is doing a round of dialysis now.
That's good.
Couldn't do one yesterday.
They are constantly monitoring the fluid on his lungs and keep sunctioning it out.
He hates that part too - even when he is sedated you can see the pain in his face.
They are not doing anything with his heart right now.
Looks like it's working about 50% on each side.
Getting him prepped for surgery.
Hoping the trach helps him breath better and is not so uncomfortable.
A nurse yesterday said he probably won't remember much about all of this.
I'm not so sure....
Feeling a bit helpless today.
Another long day ahead of us.
Stephanie is so good with him - calming him down.
Matthew is doing great - at school - being a 6 year old.
Surgery is at 1PM - praying.....
More later
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